Help James raise as much money as possible to #FightEB

Meet 24-year-old James Dunn who is terminally ill. He has Epidermolysis Bullosa (EB), a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering.

James was diagnosed with skin cancer in December 2015; he is currently in remission and now on a mission to raise as much money as possible to #FightEB before the cancer comes back.

Read the full story

0

£12,882.67

Target: £100,000.00

Raise free funds for James Dunn’s #FightEB Appeal when you shop online via Give as you Live at over 4,100 stores, including:

James' story

Meet 24-year-old James Dunn who is terminally ill. He has Epidermolysis Bullosa (EB), a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering.

Because of his EB, James is bandaged from the neck down to protect his skin. The bandages need to be changed regularly, a process that typically takes three hours. Even removing them can damage his skin and it’s a very painful process for him and his mum.

James is determined to live life to the full. He’s a keen photographer with a great eye for street photography. Repeated blistering and scarring has destroyed his fingers and caused the skin to fuse together. Thanks to the BBC’s Big Life Fix, he recently had his camera adapted so he can take photos without having to use his hands.

EB affects much more than the skin.
 ‘Blisters in my throat have made it impossible to eat food I used to enjoy – most of the time I’m fed through a tube in my stomach,’ he says. ‘Even with this it’s a daily challenge to take on all the calories I need as so much energy gets used up by my constantly healing skin.

‘In 2015, I was diagnosed with an aggressive and ultimately fatal form of skin cancer caused by my EB. Luckily, it was spotted early and I’ve been given the all clear for now. But it will be back – it’s just a question of when.’

James dunn

James is on a mission to leave a legacy.
‘I want to raise as much money as possible so that in the future people with EB don’t have to suffer the way I have,’ says James.

Raising money is important to provide the care and support people suffering from EB need, and to fund research into a cure. But awareness of EB is poor, even though over 500,000 people around the world suffer from the condition. If I can say that I helped to make EB a well-known condition that everyone understands, that will be an even greater legacy to leave behind.

‘That’s why I’m asking everyone to get behind DEBRA’s #FightEB campaign and raise EB awareness. I’ve made a short film with DEBRA which everyone can watch and share to make EB well known everywhere.’

Join the #FightEB movement now.
‘As a photographer, I travel a lot to take new photos. But everywhere I go, people ask what is wrong with me, whether I was burned in a fire or injured in an accident, and sometimes whether I’m getting enough to eat. It’s very isolating and you feel incredibly lonely. Wider understanding of EB would change my life.’

‘Sometimes, I even have to explain it to doctors, and it’s a never-ending struggle to get the care and support I need because they don’t always know how to look after my skin.

Help James achieve his legacy.
‘When people don’t know about your condition, you suffer, mentally and physically.

‘The more well-known EB is, the faster EB awareness will spread. This will help increase the care and support available to people suffering from EB and encourage research into the condition, which could ultimately lead to better treatments and a cure.

‘I don’t know how long I have left, but I know I’m too young to pass away from this condition.

I want to fight EB. I want to beat EB. That’s why I’m asking you to join the #FightEB movement now.’

The #FightEB appeal will run from 12 October 2017 - 28 February 2018, coinciding with the opening of the Rare Disease Centre at St Thomas’ Hospital in London.

Sandra Robinson

Herlitz Junctional EB killed my beautiful baby sons Cameron and Ewan. They suffered constant pain. Please God one day this awful disease will be cured.

£10.00 + £2.50 Gift Aid

Helen McCourt

A horrible condition that impacted our family as well. I wish you all the best James.

£20.00 + £5.00 Gift Aid

Sally

Inspirational x

£5.00 + £1.25 Gift Aid

P W

Keep fighting it! Hoping this small amount will join others to make a greater sum and be of some help.

£20.00 + £5.00 Gift Aid

Maxine mccourt

Wishing you all the best

£20.00

No fundraising pages yet, why not be the first?

Create fundraising page

Other ways to raise

22nd

October

The Great South Run - Southsea, Portsmouth

The Great South Run is the world's leading 10 mile running event and takes place on England's historic and scenic South coast. You can be one of 20,000 people who take part in this iconic running event. The Great South Run features live music en-route, great crowds and a goody bag (with medal!) for all finishers.

Find out more

22nd

October

Forest Ranger Cycle Ride - Staffordshire

The Wiggle Forest Ranger Sportive offers beautiful, undulating English countryside on a ride that will take you through the best and most scenic parts of East Staffordshire and Leicestershire counties, also encapsulating the most enticing cycling roads around The National Forest.

Find out more

28th

October

Survival Fun Zombie Run - Newbury

The ultimate thrilling zombie 5k run is coming! You need to survive not only our crazy 5k inflatable obstacle course but at the same time, evade the Zombie apocalypse on the way to the finish line!

Find out more

4th

November

Wolf Run - Leicestershire

The toughest of all Wolf Runs, Winter Wolf 2017 returns to Stanford Hall. Designed for the hardiest of you as a demanding step up embracing the harsh bite of Winter.

Find out more

5th

November

Nottingham Wheeler Cycle Ride

In its debut year, we give you one last chance to get out for a spin before the winter 
truly sets in — and what better place to do this than along the brisk and wending byways of rural Nottinghamshire.

Find out more

11th

November

Nuclear Races Essex - Brentwood

Nuclear delivers award winning fun, tough, gritty obstacle races over varied, undulating terrain. Expect big obstacles, highly organised events and relentless amounts of mud.

Find out more

18th

November

Purbeck Hill-a-Saurus - Dorset

As the name of this sportive suggests, it’s all about hills on this ride-out – as you’ll take in the best of them atop the chalky cliffs of the historic Jurassic Coast in Dorset.

Find out more

3rd

December

Santa Run - London

Join London’s largest Santa Run with over 4,000 santa’s raising funds for over 1,000 different charities. Now in our 9th year we promise you a festive fun-filled day out and a free santa costume!

Find out more

15th

September

DEBRA Sporting Challenge

Holland & Holland Shooting Grounds, Northwood, Middlesex HA6 2ST.

Find out more

15th

September

DEBRA Ladies at Sunningdale Heath

Join us there for a social day’s golf for women in support of DEBRA at what is still a hidden jewel of a course.

Find out more

17th

September

The Edinburgh Kiltwalk

The Kiltwalk is a unique Scottish charity event sponsored by Royal Bank of Scotland.

Find out more

17th

September

DEBRA Ladies Lunch

You will enjoy a sumptuous two course lunch at the Grand Central Hotel, Glasgow, which will include wine with some special treats during the afternoon.

Find out more

12th

October

Rough Runner - Manchester

Rough Runner is an obstacle course challenge, combining distance running with a variety of obstacles along the way, each inspired by game shows such as Total Wipeout, Takeshi’s Castle, Gladiators, and Fun House. Expect a 40m slide, giant pigeon battles, sweeper arms, big balls and yes, The Travelator!

Find out more

14th

October

Royal Marines Commando Challenge (5 & 10k Obstacle Race)

Taking place across Woodbury Common, near Exmouth, Devon, you will be taking on the real deal endurance training course, a course usually only tackled by the Royal Marines trainees themselves.

Find out more

What your donation will fund

James Dunn is on a mission to raise as much money as possible to #FightEB. The money raised by everyone who takes part in the #FightEB appeal could help improve the health and wellbeing of people living with EB, fund specialist healthcare to provide high quality holistic care, and support pioneering research that is leading to improved treatments for this complex and distressing condition.

  • £10 could buy two pairs of specialist socks that can reduce blistering
  • £25 could pay for one hour of enhanced EB nursing
  • £100 could provide a support grant for a family affected by EB
£